Living with Motor Neurone Disease: A complete guide is designed to guide the reader through this complex progressive neurodegenerative condition that attacks the motor neurones, or nerves, in the brain and spinal cord. This means that messages gradually stop reaching the muscles, which leads to weakness and wasting. Motor Neurone Disease can affect the everyday things that we take for granted. A diagnosis of MND which is also known as ALS can be frightening and overwhelming. Good quality information and support from people who understand MND is vital at this time.
This is an important book which will be a useful, readable, and knowledgeable resource for those diagnosed with Motor Neurone Disease and their families. It also provides a guide for healthcare professionals involved in this specialist area.
Dr Bernadette Mangan, Board Director St John of God Hospital CLG. Retired Consultant Psychiatrist and Clinical Director
This is a step-by-step guide for everyone which explains:
● what MND is ● how it is diagnosed ● how it affects the individual and the family
● the psychological dimensions of the condition ● the caregiver experience
● living with the condition and facing the future ● how to talk to children and adolescents ● how to tell family and friends ● how to adapt working conditions and home life
● how to find supports; medical, psychological technological and practical to cope with the daily impact of living with MND.
In summary, it is an invaluable resource to inform, educate prepare and signpost people toward practical everyday supports and clinical expertise.
Living with Motor Neurone Disease: A complete guide is a must-read for professionals; for doctors, nurses, educationalists, for psychologists, systemic family therapists and psychotherapists, those working in human resources and everyone who needs to understand the condition when they encounter it.